Category Archives: Ocular Melanoma

Ultra SpeedGolf Challenge 2015

A Cure in Sight, a non-profit to raise awareness of ocular melanoma and Speedgolf International teamed up to hold the first Ultra Speed Golf Challenge in Napa, California on Saturday, April 18, 2015. Many photos are below.

Karl Melder finishes his 228th hole in 12 hours.
Karl Meltzer finishes his 228th hole in 12 hours. Photo by Cy Cyr / A Cure in Sight

The event took place at the Napa Golf Course. Eight competitors completed a minimum of 100 holes and averaged 8 rounds of golf each. The eight golfers combined for 1,156 holes of golf, an average of 144.5. The group of 8 helped raise an estimated $30,000 for the cause.

Ultra marathon competitor Karl Meltzer of Utah shattered a world record by playing 229 holes of golf in 12 hours on foot. Meltzer, sponsored by Red Bull,  ran well over 55 miles during the course of play. Meltzer said he will be calling on the golf community to hold a 24 hour speed golf challenge. Meltzer had the support of his wife Cheryl during the event and friend Eric. Upon breaking the record, he cracked open a Sierra Nevada beer. He jogged and walked the record breaking holes. “I don’t want to break the record too much, I want to be able to break it again,” said Meltzer.  Meltzer, with 5 minutes remaining on the clock, didn’t attempt the next hole, a par 5. He threw his arms in the air to celebrate. Meltzer recently ran a 50K, and mostly noticed how his hands were cramping from carrying golf clubs for 55 miles.

Gretchen Johnson, the only female in the group, finished second with 171 holes. Johnson currently lives in Amsterdam while working for Nike. She was joined by her boyfriend Matt, who cheered her on throughout the day.  Johnson carries a 2 handicap and is a 10 time marathoner.

Scott Dawley, of Texas, finished with 117.  Dawley and Johnson will be featured on Golf Channel’s upcoming Altered Course show, premiering in June. Dawley is a former college and professional golfer and owner of LInksrun.com. Dawley lives in Houston with his wife and three children.

Wally English, of Berkeley, plays speedgolf to be more creative on the golf course. He has played in the last three speedgolf championships at Bandon Dunes in Oregon. English smiled his way through 102 holes with his wife and daughter nearby.

Drew Faust, an Information Architect at Nike,  was aiming for 54 holes of golf, and nearly doubled his expectations with 100.

Larry Levinson, of Ohio, powered through 8 rounds of golf (144 holes) with his wife supporting his efforts.

Stan Dittman, a dentist in Napa, had a steady stream of supporters all day to finish with an impressive 150 holes. A former marathoner, this was Dittman’s first speedgolf event. Dittman joked that he signed up to play golf all day, but didn’t realize running was involved. He finished with the 3rd highest number of holes played.

Tim Scott, a founding partner of Speedgolf International, finished with 144 holes and was often seen with his wife Lori running alongside of him. Scott was diagnosed with ocular melanoma in April 2012. He was runner up in the 2012 World Speedgolf Championships and has won several tournaments.

Tim Scott and his wife share a kiss after an early round of golf.
Tim Scott and his wife share a kiss after an early round of golf. Photo by Cy Cyr / A Cure in Sight

Editorial and social media encouraged with mandatory photo credit & proper links:

A Cure in Sight    |  Facebook  |  Instagram:  @acureinsight  Twitter: @acureinsight1

Photographer Cy Cyr   | Facebook  | Instagram + Twitter:  @cycyrdotcom

Commercial photography usage prohibited, please contact cy@cycyr.com

About Ocular Melanoma

Ocular melanoma is a rare eye cancer that develops in the melanocytes of the eye’s choroid, iris or ciliary body. While the initial tumor is nearly always treatable, about 50% of patients will develop fatal metastases.

Currently, there is no cure for metastatic ocular melanoma. However, promising evidence exists that early detection, genetic analysis, targeted treatment, and integrative therapy may guarantee better results.

About Us

A Cure In Sight™, a non-profit organization founded by ocular melanoma survivor and activist Melody Kling, is dedicated to raising ocular melanoma awareness and to helping those with ocular melanoma find and pay for the treatments that they need.A Cure In Sight™ generates funds through the sale of Ocular melanoma awareness products, by accepting donations of money, travel vouchers/frequent flyer miles, time share stays, hotel vouchers, gift cards, and gas cards to help patients find and pay for necessary treatments otherwise outside of their medical budget. An OM diagnosis does not have to mean financial crisis…when there is A Cure In Sight™.

Our Mission Statement

A Cure In Sight was founded to provide ocular melanoma awareness, support, education and funding for life saving treatments for those who suffer from ocular melanoma while supporting the whole family. Our Financial Status

A Cure In Sight™ is a registered non-profit who’s mission is to provide the highest level of patient eduction in a kind and clear content while offering support for the newly diagnosed and their caregivers. Through our outreach, partnerships, website and social media, ACIS strives to reach the ocular melanoma community and help bridge the gap between patients, physicians and insurance providers. ACIS strives to create new programs that are patient centered to improve the quality of life while battling ocular melanoma.

Our Disclaimer

The organization known as “A Cure In Sight™” is completely independent of any other organization, and not affiliated with any other websites, businesses, doctors or hospitals. Web links, web pages and website posts are for informational purposes only and do not represent a recommendation and/or endorsement byA Cure In Sight™ or their Board of Directors, Staff or Volunteers.

A Cure In Sight™ does not guarantee and/or warrant the care that may be performed by any of the providers that may referred to, linked to, or written about. You should satisfy yourself in advance that his/her/their qualifications and experience are acceptable for your needs should you choose to seek treatment or affiliate with them. This site is not designed to and does not provide medical advice and is not liable or responsible for any advice, course of treatment, diagnosis or any other information, services or product you obtain through this site.

OMF’s Eye Am Not Alone (EANA) Patient Retreat 2014 now open for registration!

The 4th annual Eye Am Not Alone (EANA) Patient Retreat will be held October 24th – 26th, 2014 at the Cole Eye Institute and the Taussig Cancer Institute at the Cleveland Clinic in Cleveland, OH.

As in years past, the 2014 EANA Retreat will combine deep medical updates from the experts at the Cleveland Clinic with with an amazing opportunity to network with and learn from your fellow OM community members. Designed for all types patients (including those recently diagnosed), their families and friends, the retreat will mirror OMF’s ground-breaking 2010 conference in Boston, MA at the Dana-Farber Cancer Center and build upon the success of OMF’s most recent retreat in Philadelphia at Jefferson University Hospital, the largest OM meeting to date! 

Confirmed speakers include Arun Singh, MD; Daniel Martin, MD; Michael McNamara, MD; Meghan Marino, MS, LGC; Yogen Saunthararajah, MD; and Jennifer Brown, RN. 

Click here for more details! “see” you there!

EANA2014SaveDate

 

Eye Patch Day 2014 raises ocular melanoma awareness!

Thank you to all who donned a patch to help raise ocular melanoma awareness on Eye Patch Day 2014! Each year this annual event grows in participation and reach. We are so proud to be part and love to see those fun “patch” posts from all of you!

“See” you next year on Eye Patch Day. Details to follow as the 2015 event draws near. In the meantime, please visit us on Facebook for more about awareness!  (Pictured below l. to r. two fabulous ocular melanoma survivors: Jessica Krascuki, ACIS Volunteer and Melody Kling, ACIS President & Founder)

SFS 2014 Mel600

A Cure In Sight Blanket: ocular melanoma inspired and fabulous!

ACIS_joanngrace_blanket

Inspired by Marla Avery, our beautiful OM survivor friend, and Joann Grace Designs…it’s the A Cure In Sight blanket! A generous 60″ x 50″  super soft velveteen blanket just waiting for you at www.joanngracedesigns.com.

We are grateful to Marla Avery and Joann Grace Designs for collaborating on such a wonderful piece to raise OM awareness!

Visit  www.joanngracedesigns.com for purchase details. Just fyi…a portion of the proceeds from each blanket will be donated directly to A Cure In Sight!

 

 

Thank you to our OMF-ACIS SWING FOR SIGHT Benefit Golf Tourney event sponsors!

Banner-ACIS-Swing-For-SIght-2014-1

We extend a gigantic and grateful “thank you” to all of our May 3, 2014 Eye Believe In A Cure OMF-ACIS SWING FOR SIGHT Benefit Golf Tournament/Winery Tour event sponsors, benefactors, and volunteers. Thanks to you we are pleased to call our first annual event a great SUCCESS!

Now we look forward to 2015 when we can build more participation and support with the goal of raising $50,000 to benefit OM patient services and research.

Stay current with our SWING FOR SIGHT 2015 event registration, sponsorship and donation info by visiting here, by visiting us on Facebook, and by checking out our dedicated event site at eyebelieveinacure.net.

Thank you all and “see” you next year!

Lescure Company and UA Local 342 to Sponsor ACIS-OMF Swing For Sight May 3 Benefit Event

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

Logo-LescureIt is with gratitude that A Cure In Sight is pleased to announce that Lescure Company of Lafayette, CA and UA Local 342 of Concord, CA will join Castle Biosciences, Inc., a leader in ocular melanoma genetic research, in sponsoring the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

logoPLU342sm2And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

Please join us, Lescure Company, UA Local 342 and Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

CastleLogoFinalsmEvent Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

“Swing For Sight” on May 3 with Re/Max World Long Drivers Women’s Champion Heather LeMaster!

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

HeatherLeMasterMeet 2013 Re/Max World Long Drivers Women’s Champion Heather LeMaster at the Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA! 

The May 3 event is sponsored by Castle Biosciences Inc., a leader in ocular melanoma genetic research, Lescure CompanyUA Local 342, and Jimmy Vasser Dealerships Napa. Additional support includes Golfsmith, Sports Authority, Visionworks, Sift Dessert Bar, Sumbody, Eagle Vines Golf Club, Skechers Performance Division, Hampton Inn Cocoa Beach, Jack Odell Designs, Performance Mechanical, Inc., Pura Vida Bracelets, Coolibar, Raw Elements Sunscreen, Stagecoach Express, FastFrame Napa, and Keith Rosenthal Photography.

And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

CastleLogoFinalPlease join us, Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

Castle Biosciences, Inc. to Sponsor ACIS/OMF Swing For Sight May 3 Benefit Event

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

A Cure In Sight is pleased to announce that Castle Biosciences, Inc., a leader in ocular melanoma genetic research, is sponsoring the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

CastleLogoFinalPlease join us, Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

Dr. Damato, Professor of Ophthalmology and Radiation Oncology at UCSF, to Speak at ACIS-OMF Swing For Sight Event on May 3

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lgA Cure In Sight is pleased to announce that  Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our speaker for the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

Please join us and hear this amazing man speak while we raise money for OM research!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

SAVE THE DATE for our Eye Believe in A Cure™ SWING FOR SIGHT Benefit Golf Tournament and Winery Tour!

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

Brought to you by A Cure In Sight™ and the Ocular Melanoma Foundation!

SAVE THE DATE for our ACIS-OMF Eye Believe in A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour on May 3, 2014 in Napa CA.

Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma

Watch for event, sponsorship and donation details here and at www.eyebelieveinacure.net and www.ocularmelanoma.org!

“See” you there!

Support Rare Disease Day With Us on February 28, 2014!

rdd1-14A Cure In Sight ™ will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 28, 2014. On this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern.

“Everyone knows someone with a rare disease,” said Peter L. Saltonstall, president and CEO of NORD. “Rare Disease Day is a time to show support for the 30 million Americans – and millions more around the world – living with rare diseases.”

A rare disease is one that affects fewer than 200,000 Americans. There are nearly 7,000 such diseases affecting nearly 30 million Americans, according to the National Institutes of Health (NIH).

Two-thirds of those affected by rare diseases are children, and the diseases tend to be serious and lifelong. Even so, most rare diseases have no approved treatment, and many are not even being studied by medical researchers. Often, research on rare diseases is funded by the families and friends of patients or by patient organizations.

At A Cure In Sight™ we know all about rare diseases because ocular melanoma is one of the rarest. The odds of being diagnosed are about six in a million, and roughly 2,500 people are diagnosed with it each year in the U.S. Thankfully, organizations like NORD promote rare disease awareness in turn advancing research and patient services.

On Rare Disease Day, patient organizations around the world unite to promote awareness of the challenges, hopes and needs of those living with rare diseases. For 2014, the focus is on caregiving, and the global theme is “Join Together for Better Care.”

In the U.S., the coalition supporting Rare Disease Day includes patient organizations, NIH and other government entities, medical researchers, hospitals and academic institutions, and pharmaceutical companies developing treatments for rare diseases.

Rare Disease Day 2014 activities in the U.S. will include State Legislature awareness events, a Tribute to Caregivers and Handprints Across America photo gallery on the national website (www.rarediseaseday.us), and events in communities across the U.S.

Rare Disease Day was launched in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe. It is now observed in more than 65 nations, and is sponsored in the U.S. by NORD.

For more information about Rare Disease Day activities in the U.S., go to www.rarediseaseday.us. For information about global activities, go to www.rarediseaseday.org.

2013: Looking Back At A Very Good Year

Last year was very good year for ocular melanoma awareness, patient services, and research… and for us at A Cure In Sight™.  With our first year tucked under our belt we can reflect and call it a winner! Highlights include…rainbow_eye

  • Starting the first line of OM awareness products
  • Forming a Cure Companions™ a buddy system for OM patients
  • Partnering with OMF to provide OM awareness and funding
  • Enjoying lots of rewarding interaction with our OM community
  • Finding our VP of Product Development, fellow OM patient Tania Herfurth of Small White Cat Design, then quickly putting her to work

Not bad for an exclusively volunteer staff!

We began the year knowing that we needed to boost OM awareness substantially (”through the roof” as we say). But, how, was the hard part. We took a shot in the dark (literally, with limited eyesight!) and started by developing our line of awareness products. No one previously had created OM directed clothing or awareness products. We were lucky to have Mike Malcom design our first sterling silver and epoxy pirate_and_friendscharm for our earrings, bracelets and necklaces. Then Tania got us rolling with a cool pirate shirt and hoodies (that crazy pirate even became our official mascot!). Tania also created several other designs for shirts and other pieces that we placed in our ACIS Cafe Press store. Plus we produced the first OM awareness ribbon car magnet. All of these items allow us to share OM awareness and enable others to “represent” too.

In May 2013 we were honored to have the largest team at the MRF/Universal Studios 5k Run/Walk. We were one of two teams to represent ocular melanoma within the larger melanoma community. Our 60-person team raised $2,500 for the MRF/Cure OM initiative to support ocular melanoma research. Our big group participated in person and as virtual partners while walking and running with us at their homes. We were united in spirit and honored to take home the prize for largest team!

In August 2013, in response to the OM community’s request for more support for the newly diagnosed and metastatic sufferers, we initiated our ACIS Cure Companions™ program. The idea occurred after watching a fellow OM warrior fight late stage disease… alone. He really needed a way to get to the doctors, and for someone to go with him, but that option just did not exist. The community voiced a need for a program where we could help each other… a patient-driven service. Cure Companions™ was born out of this need. So we brought together a wonderful group of patients and caregivers who’d volunteer to be there when a patient in need is newly diagnosed or when a patient simply would like support from “someone in their corner.” The companions  offer a variety of resources to their buddies. The best being a kind voice from someone who has been there… someone to make them feel less alone.. .or someone to talk to when nobody else can relate. We hope to grow our program and, ultimately, provide a Cure Companion™ in every city in every state.

Basic_EANA_Shirt_1_FINAL2Over the course of the year we were again honored to partner with the Ocular Melanoma Foundation to raise awareness and funds for research and patient programs. From July to November we served on the Patient Steering Committee for the OMF’s 2013 Eye Am Not Alone Patient Retreat. The annual retreat is a valuable resource for OM patients and caregivers where they can meet, share information, and learn about the latest advancements in care and management from top OM doctors and researchers. Our founder, Melody Kling, spoke about our work at A Cure In Sight™ and the vision that we share with OMF. Melody also received a very special “service to the OM community” award from OMF. Tania designed OMF’s 10-year anniversary logo and worked with OMF’s Chairman Grant Allen to create the awareness shirts and retreat shirts provided at the retreat.

Most importantly, we found the 2013 EANA Patient Retreat especially beneficial because it allowed us to gather valuable information from the OM community. We learned about what patients and caregivers really want and we will use this info to plan our 2014 events. We learned that the OM community desired an additional annual get together focused on fellowship and peer-support. They wanted it to be something fun, at a unique destination, to connect with others fighting the same fight. So a group of us met with the idea of planning a benefit golf tournament, in a beautiful location, with plenty of time to socialize, and the opportunity to raise money for OM research and patient programs. Then we flew the destination idea out for suggestions.

After some great input we chose Napa, CA because the majority indicated interest in a West Coast location. We agreed that the beautiful Napa Valley vineyards, golf courses, and rolling hills provide a naturally peaceful destination where OM patients and caregivers can unwind and spend special time with their extended OM family. We selected May 3, 2014 as the date for our first annual ACIS-OMF Eye Believe In a Cure Benefit Golf Tournament at Eagle Vines Golf Course in Napa, CA. With the location “a go” the only major question left unanswered was what to provide for our non-golfers? Thankfully our Napa contacts had that covered by suggesting that we also offer a winery tour and, possibly, a spa excursion. By offering a local winery tour we will give non-golfers an equally appealing Napa Valley experience. So mark your calendars to attend, what we hope to be a wildly successful event, on May 3, 2014 to benefit OM and to give our immediate OM community a weekend of fun and friendship surrounded by nature’s beauty.coming_soon_golf

As a fabulous bonus, we are extremely pleased to note that OMF will partner with us on the golf event and in our effort to raise $50,000 for OM research and patient programs. Patient programs are severely under-funded and were non-existent until 2013 when OMF started their TAG program (travel assistance grant) to assist patients with airfare and lodging for treatment and follow-up care. OMF also began a new program for prosthetics where they offer grants to those who cannot afford a prosthetic eye after removal of their OM affected eye. Similarly, at ACIS, we offer a program to assist patients with personal expenses and medical bills.

We look forward to the future when we can expand our patient services. There are just too many people who receive a life-changing diagnosis and, with that, a life-changing financial position, usually for the worst. Together, as a community, we can help. We can help each other afford a cure by promoting awareness, research, and patient services. And we can do it while enjoying patient retreats, educational conferences, and energizing events like our upcoming ACIS-OMF Eye Believe in a Cure Benefit Golf Tournament on May 3, 2014. After all, finding a cure is useless unless we have access to those life-saving treatments and options. As you can see… research and patient program funding is greatly needed so be sure to watch for event details on our website here, our event site at www.eyebelieveinacure.net, and on OMF’s site at www.ocularmelanoma.org!

Already a week into 2014 it is with tons of gratitude that we “look” back on a wonderful 2013. We whole-heartedly thank our OM community for joining us in our efforts and for providing such helpful feedback.  We thank all those who help spread awareness and who provide life-saving treatments and research. Because of you there is “a cure in sight.”

We look forward to a 2014 equally as full of promise and prosperity. Please join us on May 3, 2014 in beautiful Napa, CA, at the ACIS-OMF Eye Believe in a Cure Benefit Golf Tournament to help make it a reality!

 

Always our best,

Your friends at A Cure In Sight™

Thank You To All Who Helped Make The OMF EANA Patient Retreat 2013 A Success!

We send a heartfelt thank you to all who helped make the OMF EANA 2013 Patient Retreat in Philadelphia, at Jefferson Hospital’s Kimmel Cancer Center, a resounding success! Your attendance, participation, planning, support and enthusiasm made this the most inspirational retreat to date! Please visit us on Facebook for a photo recap of the event and click here to view recorded sessions on YouTube.

Now, we “focus on a cure” by  “looking” forward to EANA 2014 at the Cleveland Clinic/Cole Eye Institute and Taussig Cancer Center on October 24-25, 2014! Save the date and share with friends! Remember, for more info,  stay in touch with us here and on Facebook and on Twitter @ACureInSight1.

OMF EANA Patient Retreat 2013 Now Underway!

EANA-STD-8-13-949November 1 – 3, 2013
Philadelphia, PA

The 2013 installment of OMF’s popular Eye Am Not Alone (EANA) Patient Retreat is now underway Friday, November 1 through Sunday, November 3 at the Kimmel Cancer Center at Jefferson University Hospital in Philadelphia, PA.The retreat will combine expert medical information with the ‘softer side’ of battling OM: plenty of interaction other patients, leading OM experts from around the country, cancer therapists, and other OM community members. Targeted at patients, their families and friends, the retreat will mirror OMF’s ground-breaking 2010 conference at the Dana-Farber Cancer Center and its follow-up in Washington, DC in March 2012.

Confirmed speakers include Takami Sato MD, PhDDavid Eschelman MDCarin Gonsalves, MD,Carol Shields, MD and Peter Hovland, MD, PhD.

OMF worked  with the patient community, its Scientific Advisory Board (SAB) and Jefferson/Wills to construct an agenda best meeting the needs of the OM community.

For a schedule of events and speakers please go to www.ocularmelanoma.org. And be sure to follow us on Facebook and Twiiter for updates and more about the retreat livestream.

Let’s get those hash tags into the stream #EANA2013 #focusonacure #ocularmelanomaawareness!