A message from our VP Jack Odell on Giving Tuesday.
Today is Giving Tuesday and I would like to tell a short story of why this day is important to me:
I was newly retired, and I was enjoying the fun of designing and fabricating new products…with the assistance of my brother, Scott. It was June 2013 when we launched our new product, a line of colorful resort bags. The launch was successful, and sales were great. One month later I was diagnosed with ocular melanoma (cancer of the eye). My brother took the fabrication and distribution of the JackOdellDesign Bags to Ohio to allow John and I the ability to concentrate on my cancer treatment(s). Testing proved I had an aggressive form of this disease. We contracted with the best doctors and my team was, and is, still amazing. That’s the thing. We had the time and contacts to connect us with the “best” doctors. Other patients don’t have that availability. I have been the Vice-President of “A Cure in Sight” for two years. Our mission is to provide funding and resources for ocular melanoma patients to obtain access to second opinions, treatments (gas cards, connections to airfares, hotel stays, etc.). Along with our mission to help newly diagnosed patients of OM we also run fundraisers across the country to keep on-going OM cancer research on track. This is important because there are numerous things that can stop a research project. I know this first hand. So, we try to keep this import research, for this rare/ orphan cancer, moving forward.
A donation today will help us continue to do our work. Please give, if you can, to A Cure In Sight. #GivingTuesday
Genetic Testing from a patients perspective.
Joan shares her story about getting genetic testing of her ocular melanoma tumor to Jaime at Impact Genetics.
We are very sad to announce the passing our one of our founding Board Members, Marla Ellis Avery. Marla was instrumental in creation of A Cure In Sight and its many programs. Through her tireless effort to bring comfort to patients, Marla was beacon of hope in the ocular melanoma family. Our deepest condolences to her family and all who know her. ACIS will not be the same without her. Details on her Celebration Of Life can be seen at Legacy.com
MARLA ELLIS AVERY1971 – 2017 Obituary
Marla Ellis Avery, 46 of Denton, Texas passed away peacefully Friday, Aug 11th, 2017 in her home after a 9 year battle with Ocular Melanoma. Marla was born in Longview, Texas on Jan 29th, 1971. She grew up in Henderson, Texas and then moved to Houston and later to Dallas as a young adult. She worked in Houston & Dallas as a make-up artist. Marla lived the last 9 years in Denton where she was very involved in her church, Denton Bible. She served several years in the children’s ministry, and she was a BTCL graduate.
Marla is survived by her husband; Stephen Avery, daughter; Lucy Avery of the home. Father; Roger Ellis and wife Elia of San Antonio, Texas, her mother; Lynda Ellis of Henderson, Texas, her brother; Randy Ellis of San Antonio, Texas, her sister; Melanie Ellis Malone; of Gary, Texas, her in-laws Richard & Lisa Mercer of Denton, Texas, and father-in-law; Richard Avery of Spring, Texas. She will be missed by many brother-in-law, sister-in-laws, aunts, uncles, grandparents, cousins, nieces, nephews as well as many friends.
A celebration of life for Marla will be held at Denton Bible Church Chapel, 2300 E. University Drive, Denton, Texas 76209, at 11AM Saturday Aug 19th. Family visitation will be from 10am-11am the morning of. Flowers may be delivered to Denton Bible all day on Friday and up until 10:30 am on Saturday. In lieu of flowers donations may also be made at acureinsight.net/donate in memory of Marla.
Published in Denton Record-Chronicle on Aug. 17, 2017
Join A Cure In Sight in Dallas TX on the morning of July 15th for a walk around Bachman Lake to raise awareness and much needed funds for ocular melanoma. In our 3rd year we hope to bring old and new friends together to support each other in their ocular melanoma journey. Everyone is invited to attend. We will be spreading the word about ocular melanoma and sun safety!
For more information, registration, donation or sponsorship, see our registration site HERE
Tuesday November 29, 2016 is #GivingTuesday, a global day of giving. Make your year end donation count towards the #GivingTuesday movement by making a donation to A Cure In Sight. Share that you made a donation and use #GivingTuesday to spread the word. Make your #GivingTuesday donation HERE.
#GiveAnEye on #GIVINGTUESDAY
This November and December, the GivingTuesday movement is running #MyGivingStory, a new storytelling contest that will highlight acts of generosity that may take place out of the public spotlight. They are asking individuals across the country to share their personal reasons for giving, and then share those stories with their communities.
As a supporter of A Cure In Sight, we’d be honored if you would take this opportunity to reflect upon your commitment to our work. The nonprofit they write about in their essay will receive $2,500-10,000 grants.
How to Enter #MyGivingStory
- Go to the contest entry form (http://bit.ly/2fM4SJp) or visit the #MyGivingStory tab on #GivingTuesday’s Facebook page.
- Post a short essay (150- 600 words) responding to the question, “What inspires you to give?”
- In it, tell the story of a specific instance in which you supported a nonprofit organization in a way that was meaningful to you. Include http://acureinsight.org in the body of your story so they can connect you to ACIS.
- Submit your story by December 31st.
- Share and promote your submission on social media with #MyGivingStory and #GivingTuesday.
- Contact email@example.com or firstname.lastname@example.org with any questions!
Eye Am Not Alone
Join the top treating doctors and fellow patients and care givers as we explore current treatment trends and ways to live with ocular melanoma.
Stumpy Point North Carolina
Private water front home for relaxation and rejuvination
EYE PATCH DAY at the Queen City Cup Game Charlotte Independence v FC Cincinnati
•When: May 21st, 2016 @7p
•Where: Ramblewood Soccer Complex 10200 Nations Ford Rd, Charlotte, NC 28273
Use code EYEPATCH at checkout.
•Events: Everyone in attendance will receive a eye patch to wear, special guests will be in attendance, we will have information about Ocular Melanoma and ways to get checked
We will also have a Eye Patch Shootout at Half Time where 2 lucky fans will compete for a pair of ICC Tickets.
This will be a great night of fun, soccer, and all for a great cause. Come out and support our Charlotte Independence and A Cure Insight.
Tickets can be purchased here
What better way to raise awareness and funds for ocular melanoma than a day in Napa Valley CA. Swing For Sight gives you a choice of a shotgun start golf tournament or a tasting and tour of Kenwood and Mumm wineries. If wine and golf are not your thing, join us for dinner only! Silent Auction and raffle follow a buffet dinner and talks from the doctors of UCSF Eye Center.
Register here to join us!
Lookin’ For A Cure 5K is coming up on March 26th in Durham NC. Please join us and Duke University as we raise awareness for ocular melanoma and eye health. We will have Duke athletes and the Duke Blue devil there for photo opportunities as well as music and faceprinting.
Register or donate to the event here.
Ocular Melanoma Rare Disease Day