All posts by TH

OMF’s Eye Am Not Alone (EANA) Patient Retreat 2014 now open for registration!

The 4th annual Eye Am Not Alone (EANA) Patient Retreat will be held October 24th – 26th, 2014 at the Cole Eye Institute and the Taussig Cancer Institute at the Cleveland Clinic in Cleveland, OH.

As in years past, the 2014 EANA Retreat will combine deep medical updates from the experts at the Cleveland Clinic with with an amazing opportunity to network with and learn from your fellow OM community members. Designed for all types patients (including those recently diagnosed), their families and friends, the retreat will mirror OMF’s ground-breaking 2010 conference in Boston, MA at the Dana-Farber Cancer Center and build upon the success of OMF’s most recent retreat in Philadelphia at Jefferson University Hospital, the largest OM meeting to date! 

Confirmed speakers include Arun Singh, MD; Daniel Martin, MD; Michael McNamara, MD; Meghan Marino, MS, LGC; Yogen Saunthararajah, MD; and Jennifer Brown, RN. 

Click here for more details! “see” you there!

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Eye Patch Day 2014 raises ocular melanoma awareness!

Thank you to all who donned a patch to help raise ocular melanoma awareness on Eye Patch Day 2014! Each year this annual event grows in participation and reach. We are so proud to be part and love to see those fun “patch” posts from all of you!

“See” you next year on Eye Patch Day. Details to follow as the 2015 event draws near. In the meantime, please visit us on Facebook for more about awareness!  (Pictured below l. to r. two fabulous ocular melanoma survivors: Jessica Krascuki, ACIS Volunteer and Melody Kling, ACIS President & Founder)

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A Cure In Sight Blanket: ocular melanoma inspired and fabulous!

ACIS_joanngrace_blanket

Inspired by Marla Avery, our beautiful OM survivor friend, and Joann Grace Designs…it’s the A Cure In Sight blanket! A generous 60″ x 50″  super soft velveteen blanket just waiting for you at www.joanngracedesigns.com.

We are grateful to Marla Avery and Joann Grace Designs for collaborating on such a wonderful piece to raise OM awareness!

Visit  www.joanngracedesigns.com for purchase details. Just fyi…a portion of the proceeds from each blanket will be donated directly to A Cure In Sight!

 

 

Thank you to our OMF-ACIS SWING FOR SIGHT Benefit Golf Tourney event sponsors!

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We extend a gigantic and grateful “thank you” to all of our May 3, 2014 Eye Believe In A Cure OMF-ACIS SWING FOR SIGHT Benefit Golf Tournament/Winery Tour event sponsors, benefactors, and volunteers. Thanks to you we are pleased to call our first annual event a great SUCCESS!

Now we look forward to 2015 when we can build more participation and support with the goal of raising $50,000 to benefit OM patient services and research.

Stay current with our SWING FOR SIGHT 2015 event registration, sponsorship and donation info by visiting here, by visiting us on Facebook, and by checking out our dedicated event site at eyebelieveinacure.net.

Thank you all and “see” you next year!

Lescure Company and UA Local 342 to Sponsor ACIS-OMF Swing For Sight May 3 Benefit Event

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

Logo-LescureIt is with gratitude that A Cure In Sight is pleased to announce that Lescure Company of Lafayette, CA and UA Local 342 of Concord, CA will join Castle Biosciences, Inc., a leader in ocular melanoma genetic research, in sponsoring the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

logoPLU342sm2And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

Please join us, Lescure Company, UA Local 342 and Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

CastleLogoFinalsmEvent Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

“Swing For Sight” on May 3 with Re/Max World Long Drivers Women’s Champion Heather LeMaster!

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HeatherLeMasterMeet 2013 Re/Max World Long Drivers Women’s Champion Heather LeMaster at the Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA! 

The May 3 event is sponsored by Castle Biosciences Inc., a leader in ocular melanoma genetic research, Lescure CompanyUA Local 342, and Jimmy Vasser Dealerships Napa. Additional support includes Golfsmith, Sports Authority, Visionworks, Sift Dessert Bar, Sumbody, Eagle Vines Golf Club, Skechers Performance Division, Hampton Inn Cocoa Beach, Jack Odell Designs, Performance Mechanical, Inc., Pura Vida Bracelets, Coolibar, Raw Elements Sunscreen, Stagecoach Express, FastFrame Napa, and Keith Rosenthal Photography.

And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

CastleLogoFinalPlease join us, Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

Castle Biosciences, Inc. to Sponsor ACIS/OMF Swing For Sight May 3 Benefit Event

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

A Cure In Sight is pleased to announce that Castle Biosciences, Inc., a leader in ocular melanoma genetic research, is sponsoring the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

And…don’t forget…Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our event speaker!

CastleLogoFinalPlease join us, Castle Biosciences, Inc., (and many others) to hear this amazing man speak while we raise funds for OM research and awareness!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

Dr. Damato, Professor of Ophthalmology and Radiation Oncology at UCSF, to Speak at ACIS-OMF Swing For Sight Event on May 3

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lgA Cure In Sight is pleased to announce that  Dr. Bertil Damato, MD, PhD, FRCOphth, Director, Ocular Oncology Service, Professor of Ophthalmology and Radiation Oncology at UCSF, will be our speaker for the ACIS-OMF First Annual “Swing For Sight” Benefit Event in Napa, CA on May 3, 2014.

Please join us and hear this amazing man speak while we raise money for OM research!

Event Details

The Eye Believe In A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour, presented by A Cure In Sight™ and Ocular Melanoma Foundationon Saturday, May 3, 2014 at Eagle Vines Golf Club in Napa, CA.

Your participationsponsorship or donation will make it possible to fund groundbreaking ocular melanoma research and guarantee affordable treatment for those affected by OM.

Please visit our event site for details.and sponsorship/donation opportunities. (All sponsorships/donations greatly appreciated…big or small!)

Or visit Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma to register or donate immediately.

“See” you there on May 3, 2014!

SAVE THE DATE for our Eye Believe in A Cure™ SWING FOR SIGHT Benefit Golf Tournament and Winery Tour!

ACIS-OMF-Golf-Tourney-2014-REGISTER-TODAY-11-3-14 lg

Brought to you by A Cure In Sight™ and the Ocular Melanoma Foundation!

SAVE THE DATE for our ACIS-OMF Eye Believe in A Cure™ SWING FOR SIGHT Benefit Golf Tournament & Winery Tour on May 3, 2014 in Napa CA.

Eventbrite - ACIS-OMF Eye Believe In A Cure SWING FOR SIGHT Benefit Golf Tournament and Winery Tour for Ocular Melanoma

Watch for event, sponsorship and donation details here and at www.eyebelieveinacure.net and www.ocularmelanoma.org!

“See” you there!

Support Rare Disease Day With Us on February 28, 2014!

rdd1-14A Cure In Sight ™ will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 28, 2014. On this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern.

“Everyone knows someone with a rare disease,” said Peter L. Saltonstall, president and CEO of NORD. “Rare Disease Day is a time to show support for the 30 million Americans – and millions more around the world – living with rare diseases.”

A rare disease is one that affects fewer than 200,000 Americans. There are nearly 7,000 such diseases affecting nearly 30 million Americans, according to the National Institutes of Health (NIH).

Two-thirds of those affected by rare diseases are children, and the diseases tend to be serious and lifelong. Even so, most rare diseases have no approved treatment, and many are not even being studied by medical researchers. Often, research on rare diseases is funded by the families and friends of patients or by patient organizations.

At A Cure In Sight™ we know all about rare diseases because ocular melanoma is one of the rarest. The odds of being diagnosed are about six in a million, and roughly 2,500 people are diagnosed with it each year in the U.S. Thankfully, organizations like NORD promote rare disease awareness in turn advancing research and patient services.

On Rare Disease Day, patient organizations around the world unite to promote awareness of the challenges, hopes and needs of those living with rare diseases. For 2014, the focus is on caregiving, and the global theme is “Join Together for Better Care.”

In the U.S., the coalition supporting Rare Disease Day includes patient organizations, NIH and other government entities, medical researchers, hospitals and academic institutions, and pharmaceutical companies developing treatments for rare diseases.

Rare Disease Day 2014 activities in the U.S. will include State Legislature awareness events, a Tribute to Caregivers and Handprints Across America photo gallery on the national website (www.rarediseaseday.us), and events in communities across the U.S.

Rare Disease Day was launched in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe. It is now observed in more than 65 nations, and is sponsored in the U.S. by NORD.

For more information about Rare Disease Day activities in the U.S., go to www.rarediseaseday.us. For information about global activities, go to www.rarediseaseday.org.

Thank You To All Who Helped Make The OMF EANA Patient Retreat 2013 A Success!

We send a heartfelt thank you to all who helped make the OMF EANA 2013 Patient Retreat in Philadelphia, at Jefferson Hospital’s Kimmel Cancer Center, a resounding success! Your attendance, participation, planning, support and enthusiasm made this the most inspirational retreat to date! Please visit us on Facebook for a photo recap of the event and click here to view recorded sessions on YouTube.

Now, we “focus on a cure” by  “looking” forward to EANA 2014 at the Cleveland Clinic/Cole Eye Institute and Taussig Cancer Center on October 24-25, 2014! Save the date and share with friends! Remember, for more info,  stay in touch with us here and on Facebook and on Twitter @ACureInSight1.

OMF EANA Patient Retreat 2013 Now Underway!

EANA-STD-8-13-949November 1 – 3, 2013
Philadelphia, PA

The 2013 installment of OMF’s popular Eye Am Not Alone (EANA) Patient Retreat is now underway Friday, November 1 through Sunday, November 3 at the Kimmel Cancer Center at Jefferson University Hospital in Philadelphia, PA.The retreat will combine expert medical information with the ‘softer side’ of battling OM: plenty of interaction other patients, leading OM experts from around the country, cancer therapists, and other OM community members. Targeted at patients, their families and friends, the retreat will mirror OMF’s ground-breaking 2010 conference at the Dana-Farber Cancer Center and its follow-up in Washington, DC in March 2012.

Confirmed speakers include Takami Sato MD, PhDDavid Eschelman MDCarin Gonsalves, MD,Carol Shields, MD and Peter Hovland, MD, PhD.

OMF worked  with the patient community, its Scientific Advisory Board (SAB) and Jefferson/Wills to construct an agenda best meeting the needs of the OM community.

For a schedule of events and speakers please go to www.ocularmelanoma.org. And be sure to follow us on Facebook and Twiiter for updates and more about the retreat livestream.

Let’s get those hash tags into the stream #EANA2013 #focusonacure #ocularmelanomaawareness!

ACIS™ Introduces Cure Companions™ program!

Need a companion? Want to be a companion? Just ask!

Please contact us if you need a Cure Companion™or would like to be a Cure Companion™!

A Cure In Sight™ now offers the Cure Companions™ program to provide the newly diagnosed, or those suffering from disease progression, with a “veteran” OM companion to be a friend, to offer support, and to help navigate travel and treatment options.

The Cure Companions™ program provides the following and more!

TRAVEL BUDDY SUPPORT
TREATMENT NAVIGATION ASSISTANCE
EMOTIONAL & PHYSICAL WELLNESS SUPPORT
PATIENT ADVOCACY & AWARENESS PROMOTION

Please contact us if you need a companion or would like to be a companion!

We will be expanding this page regularly as our program continues to grow. We are looking forward to providing our OM community with friendly assistance and support through Cure Companions™.

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Let’s celebrate 1000+ Facebook likes for ocular melanoma awareness!

Help us celebrate!

Wow! Thank you all! We’ve officially reached 1000+ Facebook likes! Now that’s some serious ocular melanoma awareness!

To celebrate we’re having a “Thank You from A Cure In Sight™” giveaway! It ends on October 3 so hurry over to rafflecopter.com to enter!

We are giving away… an ACIS Pirate Hoodie, an ACIS Pirate T-Shirt, an ACIS Awareness Ribbon Charm,  and an ACIS Car Magnet!

Click here to enter!

Thank you for boosting OM awareness with us!