Genetic Testing from a patients perspective.
Joan shares her story about getting genetic testing of her ocular melanoma tumor to Jaime at Impact Genetics.
Joan shares her story about getting genetic testing of her ocular melanoma tumor to Jaime at Impact Genetics.
We are very sad to announce the passing our one of our founding Board Members, Marla Ellis Avery. Marla was instrumental in creation of A Cure In Sight and its many programs. Through her tireless effort to bring comfort to patients, Marla was beacon of hope in the ocular melanoma family. Our deepest condolences to her family and all who know her. ACIS will not be the same without her. Details on her Celebration Of Life can be seen at Legacy.com
Marla Ellis Avery, 46 of Denton, Texas passed away peacefully Friday, Aug 11th, 2017 in her home after a 9 year battle with Ocular Melanoma. Marla was born in Longview, Texas on Jan 29th, 1971. She grew up in Henderson, Texas and then moved to Houston and later to Dallas as a young adult. She worked in Houston & Dallas as a make-up artist. Marla lived the last 9 years in Denton where she was very involved in her church, Denton Bible. She served several years in the children’s ministry, and she was a BTCL graduate.
Marla is survived by her husband; Stephen Avery, daughter; Lucy Avery of the home. Father; Roger Ellis and wife Elia of San Antonio, Texas, her mother; Lynda Ellis of Henderson, Texas, her brother; Randy Ellis of San Antonio, Texas, her sister; Melanie Ellis Malone; of Gary, Texas, her in-laws Richard & Lisa Mercer of Denton, Texas, and father-in-law; Richard Avery of Spring, Texas. She will be missed by many brother-in-law, sister-in-laws, aunts, uncles, grandparents, cousins, nieces, nephews as well as many friends.
A celebration of life for Marla will be held at Denton Bible Church Chapel, 2300 E. University Drive, Denton, Texas 76209, at 11AM Saturday Aug 19th. Family visitation will be from 10am-11am the morning of. Flowers may be delivered to Denton Bible all day on Friday and up until 10:30 am on Saturday. In lieu of flowers donations may also be made at acureinsight.net/donate in memory of Marla.
Published in Denton Record-Chronicle on Aug. 17, 2017
Join A Cure In Sight in Dallas TX on the morning of July 15th for a walk around Bachman Lake to raise awareness and much needed funds for ocular melanoma. In our 3rd year we hope to bring old and new friends together to support each other in their ocular melanoma journey. Everyone is invited to attend. We will be spreading the word about ocular melanoma and sun safety!
For more information, registration, donation or sponsorship, see our registration site HERE
Tuesday November 29, 2016 is #GivingTuesday, a global day of giving. Make your year end donation count towards the #GivingTuesday movement by making a donation to A Cure In Sight. Share that you made a donation and use #GivingTuesday to spread the word. Make your #GivingTuesday donation HERE.
This November and December, the GivingTuesday movement is running #MyGivingStory, a new storytelling contest that will highlight acts of generosity that may take place out of the public spotlight. They are asking individuals across the country to share their personal reasons for giving, and then share those stories with their communities.
As a supporter of A Cure In Sight, we’d be honored if you would take this opportunity to reflect upon your commitment to our work. The nonprofit they write about in their essay will receive $2,500-10,000 grants.
How to Enter #MyGivingStory
EYE PATCH DAY at the Queen City Cup Game Charlotte Independence v FC Cincinnati
•When: May 21st, 2016 @7p
•Where: Ramblewood Soccer Complex 10200 Nations Ford Rd, Charlotte, NC 28273
Use code EYEPATCH at checkout.
•Events: Everyone in attendance will receive a eye patch to wear, special guests will be in attendance, we will have information about Ocular Melanoma and ways to get checked
We will also have a Eye Patch Shootout at Half Time where 2 lucky fans will compete for a pair of ICC Tickets.
This will be a great night of fun, soccer, and all for a great cause. Come out and support our Charlotte Independence and A Cure Insight.
Tickets can be purchased here
What better way to raise awareness and funds for ocular melanoma than a day in Napa Valley CA. Swing For Sight gives you a choice of a shotgun start golf tournament or a tasting and tour of Kenwood and Mumm wineries. If wine and golf are not your thing, join us for dinner only! Silent Auction and raffle follow a buffet dinner and talks from the doctors of UCSF Eye Center.
Register here to join us!
Lookin’ For A Cure 5K is coming up on March 26th in Durham NC. Please join us and Duke University as we raise awareness for ocular melanoma and eye health. We will have Duke athletes and the Duke Blue devil there for photo opportunities as well as music and faceprinting.
Register or donate to the event here.
The 2015 Eye Am Not Alone will be held at Cleveland Clinic again this year. This is a great opportunity to hear from and speak directly to treating doctors about the advancements in ocular melanoma treatments and adjuvant treatments. Along with meeting the doctors you will hear from other health professionals, patients and caregivers. This is a great opportunity to meet other OM patients and caregivers. Register Here
A Cure in Sight, a non-profit to raise awareness of ocular melanoma and Speedgolf International teamed up to hold the first Ultra Speed Golf Challenge in Napa, California on Saturday, April 18, 2015. Many photos are below.
The event took place at the Napa Golf Course. Eight competitors completed a minimum of 100 holes and averaged 8 rounds of golf each. The eight golfers combined for 1,156 holes of golf, an average of 144.5. The group of 8 helped raise an estimated $30,000 for the cause.
Ultra marathon competitor Karl Meltzer of Utah shattered a world record by playing 229 holes of golf in 12 hours on foot. Meltzer, sponsored by Red Bull, ran well over 55 miles during the course of play. Meltzer said he will be calling on the golf community to hold a 24 hour speed golf challenge. Meltzer had the support of his wife Cheryl during the event and friend Eric. Upon breaking the record, he cracked open a Sierra Nevada beer. He jogged and walked the record breaking holes. “I don’t want to break the record too much, I want to be able to break it again,” said Meltzer. Meltzer, with 5 minutes remaining on the clock, didn’t attempt the next hole, a par 5. He threw his arms in the air to celebrate. Meltzer recently ran a 50K, and mostly noticed how his hands were cramping from carrying golf clubs for 55 miles.
Gretchen Johnson, the only female in the group, finished second with 171 holes. Johnson currently lives in Amsterdam while working for Nike. She was joined by her boyfriend Matt, who cheered her on throughout the day. Johnson carries a 2 handicap and is a 10 time marathoner.
Scott Dawley, of Texas, finished with 117. Dawley and Johnson will be featured on Golf Channel’s upcoming Altered Course show, premiering in June. Dawley is a former college and professional golfer and owner of LInksrun.com. Dawley lives in Houston with his wife and three children.
Wally English, of Berkeley, plays speedgolf to be more creative on the golf course. He has played in the last three speedgolf championships at Bandon Dunes in Oregon. English smiled his way through 102 holes with his wife and daughter nearby.
Drew Faust, an Information Architect at Nike, was aiming for 54 holes of golf, and nearly doubled his expectations with 100.
Larry Levinson, of Ohio, powered through 8 rounds of golf (144 holes) with his wife supporting his efforts.
Stan Dittman, a dentist in Napa, had a steady stream of supporters all day to finish with an impressive 150 holes. A former marathoner, this was Dittman’s first speedgolf event. Dittman joked that he signed up to play golf all day, but didn’t realize running was involved. He finished with the 3rd highest number of holes played.
Tim Scott, a founding partner of Speedgolf International, finished with 144 holes and was often seen with his wife Lori running alongside of him. Scott was diagnosed with ocular melanoma in April 2012. He was runner up in the 2012 World Speedgolf Championships and has won several tournaments.
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Ocular melanoma is a rare eye cancer that develops in the melanocytes of the eye’s choroid, iris or ciliary body. While the initial tumor is nearly always treatable, about 50% of patients will develop fatal metastases.
Currently, there is no cure for metastatic ocular melanoma. However, promising evidence exists that early detection, genetic analysis, targeted treatment, and integrative therapy may guarantee better results.
A Cure In Sight™, a non-profit organization founded by ocular melanoma survivor and activist Melody Kling, is dedicated to raising ocular melanoma awareness and to helping those with ocular melanoma find and pay for the treatments that they need.A Cure In Sight™ generates funds through the sale of Ocular melanoma awareness products, by accepting donations of money, travel vouchers/frequent flyer miles, time share stays, hotel vouchers, gift cards, and gas cards to help patients find and pay for necessary treatments otherwise outside of their medical budget. An OM diagnosis does not have to mean financial crisis…when there is A Cure In Sight™.
A Cure In Sight was founded to provide ocular melanoma awareness, support, education and funding for life saving treatments for those who suffer from ocular melanoma while supporting the whole family. Our Financial Status
A Cure In Sight™ is a registered non-profit who’s mission is to provide the highest level of patient eduction in a kind and clear content while offering support for the newly diagnosed and their caregivers. Through our outreach, partnerships, website and social media, ACIS strives to reach the ocular melanoma community and help bridge the gap between patients, physicians and insurance providers. ACIS strives to create new programs that are patient centered to improve the quality of life while battling ocular melanoma.
The organization known as “A Cure In Sight™” is completely independent of any other organization, and not affiliated with any other websites, businesses, doctors or hospitals. Web links, web pages and website posts are for informational purposes only and do not represent a recommendation and/or endorsement byA Cure In Sight™ or their Board of Directors, Staff or Volunteers.
A Cure In Sight™ does not guarantee and/or warrant the care that may be performed by any of the providers that may referred to, linked to, or written about. You should satisfy yourself in advance that his/her/their qualifications and experience are acceptable for your needs should you choose to seek treatment or affiliate with them. This site is not designed to and does not provide medical advice and is not liable or responsible for any advice, course of treatment, diagnosis or any other information, services or product you obtain through this site.
Last year was very good year for ocular melanoma awareness, patient services, and research… and for us at A Cure In Sight™. With our first year tucked under our belt we can reflect and call it a winner! Highlights include…
Not bad for an exclusively volunteer staff!
We began the year knowing that we needed to boost OM awareness substantially (”through the roof” as we say). But, how, was the hard part. We took a shot in the dark (literally, with limited eyesight!) and started by developing our line of awareness products. No one previously had created OM directed clothing or awareness products. We were lucky to have Mike Malcom design our first sterling silver and epoxy charm for our earrings, bracelets and necklaces. Then Tania got us rolling with a cool pirate shirt and hoodies (that crazy pirate even became our official mascot!). Tania also created several other designs for shirts and other pieces that we placed in our ACIS Cafe Press store. Plus we produced the first OM awareness ribbon car magnet. All of these items allow us to share OM awareness and enable others to “represent” too.
In May 2013 we were honored to have the largest team at the MRF/Universal Studios 5k Run/Walk. We were one of two teams to represent ocular melanoma within the larger melanoma community. Our 60-person team raised $2,500 for the MRF/Cure OM initiative to support ocular melanoma research. Our big group participated in person and as virtual partners while walking and running with us at their homes. We were united in spirit and honored to take home the prize for largest team!
In August 2013, in response to the OM community’s request for more support for the newly diagnosed and metastatic sufferers, we initiated our ACIS Cure Companions™ program. The idea occurred after watching a fellow OM warrior fight late stage disease… alone. He really needed a way to get to the doctors, and for someone to go with him, but that option just did not exist. The community voiced a need for a program where we could help each other… a patient-driven service. Cure Companions™ was born out of this need. So we brought together a wonderful group of patients and caregivers who’d volunteer to be there when a patient in need is newly diagnosed or when a patient simply would like support from “someone in their corner.” The companions offer a variety of resources to their buddies. The best being a kind voice from someone who has been there… someone to make them feel less alone.. .or someone to talk to when nobody else can relate. We hope to grow our program and, ultimately, provide a Cure Companion™ in every city in every state.
Over the course of the year we were again honored to partner with the Ocular Melanoma Foundation to raise awareness and funds for research and patient programs. From July to November we served on the Patient Steering Committee for the OMF’s 2013 Eye Am Not Alone Patient Retreat. The annual retreat is a valuable resource for OM patients and caregivers where they can meet, share information, and learn about the latest advancements in care and management from top OM doctors and researchers. Our founder, Melody Kling, spoke about our work at A Cure In Sight™ and the vision that we share with OMF. Melody also received a very special “service to the OM community” award from OMF. Tania designed OMF’s 10-year anniversary logo and worked with OMF’s Chairman Grant Allen to create the awareness shirts and retreat shirts provided at the retreat.
Most importantly, we found the 2013 EANA Patient Retreat especially beneficial because it allowed us to gather valuable information from the OM community. We learned about what patients and caregivers really want and we will use this info to plan our 2014 events. We learned that the OM community desired an additional annual get together focused on fellowship and peer-support. They wanted it to be something fun, at a unique destination, to connect with others fighting the same fight. So a group of us met with the idea of planning a benefit golf tournament, in a beautiful location, with plenty of time to socialize, and the opportunity to raise money for OM research and patient programs. Then we flew the destination idea out for suggestions.
After some great input we chose Napa, CA because the majority indicated interest in a West Coast location. We agreed that the beautiful Napa Valley vineyards, golf courses, and rolling hills provide a naturally peaceful destination where OM patients and caregivers can unwind and spend special time with their extended OM family. We selected May 3, 2014 as the date for our first annual ACIS-OMF Eye Believe In a Cure Benefit Golf Tournament at Eagle Vines Golf Course in Napa, CA. With the location “a go” the only major question left unanswered was what to provide for our non-golfers? Thankfully our Napa contacts had that covered by suggesting that we also offer a winery tour and, possibly, a spa excursion. By offering a local winery tour we will give non-golfers an equally appealing Napa Valley experience. So mark your calendars to attend, what we hope to be a wildly successful event, on May 3, 2014 to benefit OM and to give our immediate OM community a weekend of fun and friendship surrounded by nature’s beauty.
As a fabulous bonus, we are extremely pleased to note that OMF will partner with us on the golf event and in our effort to raise $50,000 for OM research and patient programs. Patient programs are severely under-funded and were non-existent until 2013 when OMF started their TAG program (travel assistance grant) to assist patients with airfare and lodging for treatment and follow-up care. OMF also began a new program for prosthetics where they offer grants to those who cannot afford a prosthetic eye after removal of their OM affected eye. Similarly, at ACIS, we offer a program to assist patients with personal expenses and medical bills.
We look forward to the future when we can expand our patient services. There are just too many people who receive a life-changing diagnosis and, with that, a life-changing financial position, usually for the worst. Together, as a community, we can help. We can help each other afford a cure by promoting awareness, research, and patient services. And we can do it while enjoying patient retreats, educational conferences, and energizing events like our upcoming ACIS-OMF Eye Believe in a Cure Benefit Golf Tournament on May 3, 2014. After all, finding a cure is useless unless we have access to those life-saving treatments and options. As you can see… research and patient program funding is greatly needed so be sure to watch for event details on our website here, our event site at www.eyebelieveinacure.net, and on OMF’s site at www.ocularmelanoma.org!
Already a week into 2014 it is with tons of gratitude that we “look” back on a wonderful 2013. We whole-heartedly thank our OM community for joining us in our efforts and for providing such helpful feedback. We thank all those who help spread awareness and who provide life-saving treatments and research. Because of you there is “a cure in sight.”
We look forward to a 2014 equally as full of promise and prosperity. Please join us on May 3, 2014 in beautiful Napa, CA, at the ACIS-OMF Eye Believe in a Cure Benefit Golf Tournament to help make it a reality!
Always our best,
Your friends at A Cure In Sight™