All posts by MelodyB

Eye Believe Patient Survivorship Seminar Orlando Nov.28-Dec.2, 2018

The 1st Annual Eye Believe Patient Survivorship Seminar comes to Orlando Florida at Disney’s Coronado Springs Resort.  Join us for 3 days of skill building, education, connecting with other ocular melanoma patients, and most of all, making memories.  Families are welcome and encouraged to participate. We will have sessions for children and family members so bring the whole family.

Registration is open and ready for you to book your accommodations.  The seminar is free to attend with a special Disney room rate of $150.00 + tax room rate for a family of 4 people over 3. See the Disney registration site for more information on room rates and restrictions.   Disney has been so generous and has extended our discounted room rate to include additional days prior to and after our seminar.  Consider extending your stay and make more memories with your loved ones.  Register for the seminar HERE

You will receive free transportation to and from Orlando’s MCO airport with your room reservation.  Contact Disney Transportation to reserve your transportation after you have booked your room and your flight. When you book your room with Disney, you will be eligible to purchase park tickets at a discounted rate.  They are also offering our guests special half day and twilight tickets to all parks at a reduced rate. Buy your tickets early and you’ll be able to reserve your fast passes and schedule dining reservations with  My Disney Experience. 

If you are not a Disney person, no worries.  There is a lot to do outside of the parks at Disney Springs.  Shopping, dinning, movies, bowling and more is available just a free bus ride away from the Hotel.  Disney transportation offers free shuttles to and from Disney Springs and all of the Disney parks. In addition you can enjoy many of the hotel spas, golf, miniature golf, ESPN Zone, and a water park all on the Disney property.

Our schedule is still being finalized and speakers will be added so check back for more information.

 

 

 

 

1st Annual Lookin’ For A Cure 5k in Palo Alto California

Join us and be one of the first to walk for ocular melanoma in Palo Alto CA.  A Cure In Sight is coming to the Bay area to spread awareness for OM with Stanfords Byers Eye Institute and other Doctors in the area.  Join us for a walk or run followed by an after party of food, fun and activities for the kids.  May 20th, 8 am registration, 9am start time.  Byers Eye Institute 2452 Watson Ct, Palo Alto CA.  Early packet pickup at Fleet Feet Menlo Park.

Text PaloAlto to 71777 or register HERE

Durham NC 5K For Ocular Melanoma

3rd annual Lookin’ For A Cure 5K brought to you by Duke Eye Center, Carolina Eye Prosthetics, Novella and Duke Federal Credit Union!  Join us at the Durham Bulls Athletic Park on April 14, 2018 for a 5k walk or run through Durham to raise awareness and funding for ocular melanoma.  Text Lookin to 71777 to register.  Registration and packet pickup 4:30-6:30 at Bull City Running, 202 W NC Hgwy 54 Suite 100, Durham NC.

Registration the morning of the event starts 8am.  Event starts at 9am.  Bring the kids and the dogs!  Bounce house and face painter for the kids or the kid at heart! For more information, contact Melody at melody@acureinsight.org or 919-885-5264.

Giving Tuesday

A message from our VP Jack Odell on Giving Tuesday.

Today is Giving Tuesday and I would like to tell a short story of why this day is important to me:
I was newly retired, and I was enjoying the fun of designing and fabricating new products…with the assistance of my brother, Scott. It was June 2013 when we launched our new product, a line of colorful resort bags. The launch was successful, and sales were great. One month later I was diagnosed with ocular melanoma (cancer of the eye). My brother took the fabrication and distribution of the JackOdellDesign Bags to Ohio to allow John and I the ability to concentrate on my cancer treatment(s). Testing proved I had an aggressive form of this disease. We contracted with the best doctors and my team was, and is, still amazing. That’s the thing. We had the time and contacts to connect us with the “best” doctors. Other patients don’t have that availability. I have been the Vice-President of “A Cure in Sight” for two years. Our mission is to provide funding and resources for ocular melanoma patients to obtain access to second opinions, treatments (gas cards, connections to airfares, hotel stays, etc.). Along with our mission to help newly diagnosed patients of OM we also run fundraisers across the country to keep on-going OM cancer research on track. This is important because there are numerous things that can stop a research project. I know this first hand. So, we try to keep this import research, for this rare/ orphan cancer, moving forward.

 

A donation today will help us continue to do our work. Please give, if you can, to A Cure In Sight. #GivingTuesday

Marla Ellis Avery 1971-2017

We are very sad to announce the passing our one of our founding Board Members, Marla Ellis Avery.  Marla was instrumental in creation of A Cure In Sight and its many programs.  Through her tireless effort to bring comfort to patients, Marla was beacon of hope in the ocular melanoma family.  Our deepest condolences to her family and all who know her.  ACIS will not be the same without her.   Details on her Celebration Of Life can be seen at  Legacy.com  

MARLA ELLIS AVERY1971 – 2017 Obituary

Marla Ellis Avery, 46 of Denton, Texas passed away peacefully Friday, Aug 11th, 2017 in her home after a 9 year battle with Ocular Melanoma. Marla was born in Longview, Texas on Jan 29th, 1971. She grew up in Henderson, Texas and then moved to Houston and later to Dallas as a young adult. She worked in Houston & Dallas as a make-up artist. Marla lived the last 9 years in Denton where she was very involved in her church, Denton Bible. She served several years in the children’s ministry, and she was a BTCL graduate.

Marla is survived by her husband; Stephen Avery, daughter; Lucy Avery of the home. Father; Roger Ellis and wife Elia of San Antonio, Texas, her mother; Lynda Ellis of Henderson, Texas, her brother; Randy Ellis of San Antonio, Texas, her sister; Melanie Ellis Malone; of Gary, Texas, her in-laws Richard & Lisa Mercer of Denton, Texas, and father-in-law; Richard Avery of Spring, Texas. She will be missed by many brother-in-law, sister-in-laws, aunts, uncles, grandparents, cousins, nieces, nephews as well as many friends.

A celebration of life for Marla will be held at Denton Bible Church Chapel, 2300 E. University Drive, Denton, Texas 76209, at 11AM Saturday Aug 19th. Family visitation will be from 10am-11am the morning of. Flowers may be delivered to Denton Bible all day on Friday and up until 10:30 am on Saturday. In lieu of flowers donations may also be made at acureinsight.net/donate in memory of Marla.

 

Published in Denton Record-Chronicle on Aug. 17, 2017

 

Lookin’ For A Cure 5k Dallas For Ocular Melanoma

Join A Cure In Sight in Dallas TX on the morning of July 15th for a walk around Bachman Lake to raise awareness and much needed funds for ocular melanoma.  In our 3rd year we hope to bring old and new friends together to support each other in their ocular melanoma journey.  Everyone is invited to attend.  We will be spreading the word about ocular melanoma and sun safety!

Thank you to our sponsor for making our event possible.  BB&T Bank, North Texas Vision, Kleinlman Evangelista and more!

If you would like to sponsor, donate or volunteer, please contact us at contact@acureinsight.org or 919-885-5264.

For more information, registration, donation or sponsorship, see our registration site HERE

#GivingTuesday

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Tuesday November 29, 2016 is #GivingTuesday, a global day of giving.  Make your year end donation count towards the #GivingTuesday movement by making a donation to A Cure In Sight.  Share that you  made a donation and use #GivingTuesday to spread the word.  Make your #GivingTuesday donation HERE.

#GiveAnEye on #GIVINGTUESDAY

 With every $10 or more donation, ACIS w15292636_10206620198538565_1221882075_oill send you or a loved one an Eye  to spread awareness of ocular melanoma.

Share your story of how ACIS has helped you.

mgs_0This November and December, the GivingTuesday movement is running #MyGivingStory, a new storytelling contest that will highlight acts of generosity that may take place out of the public spotlight. They are asking individuals across the country to share their personal reasons for giving, and then share those stories with their communities.

As a supporter of A Cure In Sight, we’d be honored if you would take this opportunity to reflect upon your commitment to our work. The nonprofit they write about in their essay will receive $2,500-10,000 grants.

How to Enter #MyGivingStory

  • Go to the contest entry form (http://bit.ly/2fM4SJp) or visit the #MyGivingStory tab on #GivingTuesday’s Facebook page.
  • Post a short essay (150- 600 words) responding to the question, “What inspires you to give?”
  • In it, tell the story of a specific instance in which you supported a nonprofit organization in a way that was meaningful to you.  Include http://acureinsight.org in the body of your story so they can connect you to ACIS.
  • Submit your story by December 31st.
  • Share and promote your submission on social media with #MyGivingStory and #GivingTuesday.
  • Contact info@givingtuesday.org or contact@acureinsight.org with any questions!

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